The charity aims to support vital research into bone cancer
In pursuit of Hannah’s ambition for her charity to make a tangible contribution to research into osteosarcoma, we’re already talking to leading clinicians and academics about how we most appropriately direct our funds. What’s evident is that there’s both a real need and an excitement about this. Osteosarcoma sadly attracts very little funding, in part because of its rarity and due it not having a high profile.
We’ve already met with one of the UK’s pre-eminent research hospitals and are planning to talk to further institutions of similar standing, both clinical and academic. This has included meeting Professor Jeremy Whelan, Consultant Medical Oncologist at UCLH, where we explored the issues surrounding current research and how we might assist. This was followed by an invaluable meeting with Dr Claire Clarkin of Southampton University. This was facilitated by Alice Goring, a good friend of Hannah’s, who is studying for her postgraduate studies under Claire. In a wide-ranging discussion, we explored specific funding initiatives that we could support. Finally, we’re due to meet with Professor Claire Lewis, who is Professor of Molecular & Cellular Pathology at Sheffield University. Prof Lewis has recently led some very high profile research and clinical trials using “Trojan Horse” therapy and we’re very much looking forward to meeting her.
We know just how much passion and dedication has gone into the extraordinary fundraising efforts made by so many people around the country who have been moved to do so by Hannah’s story. We’re very conscious of the enormous responsibility that sits with using these funds in the most meaningful way. As such, we’re guardians of Hannah’s ambitions for the charity and want to ensure we consider all options in order to make the right decisions. However, we know that time is of the essence too. We also acknowledge that we need expert guidance and will be relying on a number of experts to assist us in our decision- making. What’s for sure is that the very many events and fundraising activities being run around the country really will have a huge impact on our ability to make a difference and we’re so grateful for everyone’s efforts.